Chrone's Disiase

Discussion in 'KANSAS RIVERS TALK' started by Mr. Foster, Apr 27, 2009.

  1. Mr. Foster

    Mr. Foster New Member

    Messages:
    1,352
    State:
    Kansas
    I was diagnosed with Chrones disiase ten years ago. I havent talked to anyone else who has it. Its always my brother has it, my uncle has it and so on. Just wandering if anyone else has it and how they cope with it? There are so many good people in here, and sometimes it helps to talk about it.
     
  2. Buckedup

    Buckedup New Member

    Messages:
    72
    State:
    NC
    Hey Brent,
    Dont feel alone brother I have had it for 20 yrs. I had surgery 2 yrs ago, that is the natural progression of the disease. As of now I am still taking meds (6mercaptipurine) and will continue to keep it at bay. It can come back if you dont take the meds. You know everyone that has it is different when it comes to symptoms, pain and the such. I hope yours is manageable. I have taken remicade(snake poison), asacol (didnt work),prednisone and 6 MP. 6 MP wont put out the fire like Prednisone but will keep it in check. Make sure you have a specialist, get someone who is concerned about your disease and not just racking up $ at your expense. What people dont realize is that not only are you fighting this nasty disease you also will fight depression. If you havent seen your Doc about that I strongly recommend it. People who dont have it dont understand the pain involved and some of the other nasty things associated with it.
     

  3. KC Jayhawk 78

    KC Jayhawk 78 New Member

    Messages:
    3,236
    State:
    Kansas City, Ks
    Im really sorry to hear that fellas. Ill say a prayer for the both of you.
     
  4. jtrew

    jtrew New Member

    Messages:
    4,404
    State:
    Little Rock, AR
    Not Chrones, but ulcerative colitis; I understand that they are similar, but I don't know exactly what the difference is. I was diagnosed with ulcerative colitis in 1968, when I was in the Air Force. They wanted to put me out with a 30% disability, but I managed to convince the doctor to let me stay in. Got caught in the RIF in 1975 (Reduction In Force) right after Vietnam ended. Got colon cancer in 1983 and had to have everything removed, so I'm 100% DAV now. No recurrance.
     
  5. Buckedup

    Buckedup New Member

    Messages:
    72
    State:
    NC
    UC eats a hole in your intestine. Chrohns is more of an area of the digestive track that your body feels is in need of white blood cells and bombards that area and causes the inflammation and swelling. The intestine swells inward not outward thus constricting the pathway. Scar tissue builds up over time and the fear of an obstruction is very real. Cancer can occur with Chrohns but relatively low risk, is not as high a risk as UC which is high. Chrohns and UC can appear anywher in the digestive tract from mouth to your business end. People with Chrohns and UC usually get a colonoscopy every 1 to 2 yrs. max. to keep a check on any precancerous cells.
     
  6. Mr. Foster

    Mr. Foster New Member

    Messages:
    1,352
    State:
    Kansas
    Thankyou for that bit of information.